The post with no English



Comments

Post a Comment

Popular posts from this blog

A new adventure for the church

 There's a running joke in the disability community called: Crip Time. It basically alludes to the fact that we either 1) run late because things just take us longer due to disability, or 2) our time is not valued by society because of our disabilities so we are expected to wait longer for things than abled people. Thus the passage for time when in a constant state of disability is nebulous and weird. Like, I had appointments this week with my Neurologist, Cardiologist, and Physical Therapist, which seems like a lot of medical stuff in one week to an abled person, but for me is normal. The other days this week, however, we're mostly spent getting ready for these appointments and sleeping. Which makes it all the more strange when people in the "real world" tend to ask me "what have you been up to these days?" I mean, the same old thing I always am, and also kinda nothing, because very few of these medical appointments feel like progress anymore. It's just...
Read more

Apparently I'm so bad at what I do most that it might kill me

Image
 So, because of my chronic illnesses it is rather common for me to sleep around 12-19 hours per 24 hour day. It's a bit more than most people, and it is actually rather sucky because it's not like it helps me feel good, it just means I don't end up feeling worse (mostly). What it really means is that I don't often have enough time in my awake part of the day to complete chores, self-care, or projects, especially when I am often driving and attending 3 people's worth of medical visits. Yesterday's visit meant 45 minutes of waiting, another 45 of prep time, and then they told me they couldn't proceed to plan without a pre-authorization. This is often my standard kind of day. So I do my best to keep a book/kindle/phone with me and fully charged to use while I wait. But back to the sleeping thing. It's what I do most, but apparently I'm really bad at it. According to my new pulmonologist, I stop breathing while I sleep. More than 34 times per hour all ni...
Read more

Getting thrown off a cliff

Image
 So it's no secret that I'm disabled, and have been for a few years now. Let me tell you the learning curve is steep! Especially when it comes to the government. There is so little I knew about disability law, support assistance, and government healthcare before I found myself wading through the bureaucratic system essentially solo (shoutout to my mom and friend Angie for all they did to help!). It was terrifying. And I had success, putting me in the "lucky" top 20%, so I know it could have been so much worse. Why does this matter to anyone else? Well, for starters, anyone could become disabled on any day of the week, and most of us will be disabled at some point in our lives (though most commonly in old age). You have literally zero control of when it could happen; for all you know you're already a ticking time bomb like I was, or there's a car crash coming, or any other thousands of things. Plus, studies are showing that with each time a person catches Covid...
Read more