About

I'm a young-ish disabled 30-something looking to build a life and find my way.  I have been extremely active in the local and diocesan activities of the Episcopal church with a focus on youth ministry (grades 6-12).

I served in the Episcopal Church's Young Adult Service Corp, placed with the Diocese of Brasília to serve as a computer teacher at a program center run by the local Anglican churches.

I am now home, back in the Diocese of Southwest Florida.

Currently, I have a program for churches to better serve and engage with disabled neighbors. You can learn more about that or set up a class here.

Feel free to contact me with any thoughts or questions about my goals, career, or ministry.  I'd love to hear from you. Fill out the info in the "Get in Touch" box to the right and I'll email you as soon as I'm able.

For more info about my personal policies for e-connections and social media please click here.

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Getting thrown off a cliff

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 So it's no secret that I'm disabled, and have been for a few years now. Let me tell you the learning curve is steep! Especially when it comes to the government. There is so little I knew about disability law, support assistance, and government healthcare before I found myself wading through the bureaucratic system essentially solo (shoutout to my mom and friend Angie for all they did to help!). It was terrifying. And I had success, putting me in the "lucky" top 20%, so I know it could have been so much worse. Why does this matter to anyone else? Well, for starters, anyone could become disabled on any day of the week, and most of us will be disabled at some point in our lives (though most commonly in old age). You have literally zero control of when it could happen; for all you know you're already a ticking time bomb like I was, or there's a car crash coming, or any other thousands of things. Plus, studies are showing that with each time a person catches Covid
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Apparently I'm so bad at what I do most that it might kill me

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 So, because of my chronic illnesses it is rather common for me to sleep around 12-19 hours per 24 hour day. It's a bit more than most people, and it is actually rather sucky because it's not like it helps me feel good, it just means I don't end up feeling worse (mostly). What it really means is that I don't often have enough time in my awake part of the day to complete chores, self-care, or projects, especially when I am often driving and attending 3 people's worth of medical visits. Yesterday's visit meant 45 minutes of waiting, another 45 of prep time, and then they told me they couldn't proceed to plan without a pre-authorization. This is often my standard kind of day. So I do my best to keep a book/kindle/phone with me and fully charged to use while I wait. But back to the sleeping thing. It's what I do most, but apparently I'm really bad at it. According to my new pulmonologist, I stop breathing while I sleep. More than 34 times per hour all ni
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Round 12 of my fight vs me

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