Posts

Showing posts with the label Chronic Illness

A POTS Primer

 In my daily encounters, I'm finding more and more people who are dealing with Postural Orthostatic Tachycardia Syndrome (POTS) or other similar autonomic system dysfunctions.  There's honestly too little information out there about what life with this condition is like, what kinds of treatments help, and what accommodations a person can make to make life safer and easier. Please note: none of this post is medical advice; I'm not a doctor. There are affiliate links at the end of this post for some of my personal favorite products; if you follow these links, I may earn a small commission at no extra cost to you. Let's start at the beginning:  Autonomic System- this system in your body is responsible for everything your body does subconsciously in response to stimuli. It is involved in things like blood pressure, digestion, and body temperature. If you change position, your autonomic system should adjust your blood pressure so blood keeps flowing to your head and extremit...

Apparently I'm so bad at what I do most that it might kill me

Image
 So, because of my chronic illnesses it is rather common for me to sleep around 12-19 hours per 24 hour day. It's a bit more than most people, and it is actually rather sucky because it's not like it helps me feel good, it just means I don't end up feeling worse (mostly). What it really means is that I don't often have enough time in my awake part of the day to complete chores, self-care, or projects, especially when I am often driving and attending 3 people's worth of medical visits. Yesterday's visit meant 45 minutes of waiting, another 45 of prep time, and then they told me they couldn't proceed to plan without a pre-authorization. This is often my standard kind of day. So I do my best to keep a book/kindle/phone with me and fully charged to use while I wait. But back to the sleeping thing. It's what I do most, but apparently I'm really bad at it. According to my new pulmonologist, I stop breathing while I sleep. More than 34 times per hour all ni...

Lost in the Void

Image
 Ok, so, I don't actually have a TikTok account because I live on a wifi network with a super security conscious person (and that extra-ness applies in ALL things, like, I apparently am supposed to rinse out the cans from my seltzer water before I recycle them...???😶) But I do love the concept of the app, so I just live a couple weeks behind the timeline of the "cool kids" and see the same viral vids when they appear on the "old people" versions of social media I already have, like facebook or insta. As far as productivity goes, viral reels and ADHD are a match made in hell, but because I have to spend many hours a day laying down and resting to moderate my health issues, it's not like I was ever going to be super productive anyway.  What I do have are a very particular set of skills. Skills that make me a nightmare for people who want to save money. Basically, my current top categories of reels are either of the wonderful Penny the Cat, or of cool amazon f...